As an Adies sufferer, what colour are your eyes?

Aides pupil

I have an Aides pupil and have had it all my life,I am now 50 and it is getting worse.I have been seeing visions in front of me,I shut my eyes when I get into bed,and instantly I start seeing people I dont know or have never seen before.These events are disturbing as they can happen at anytime.I can see electricity around everything,especially plants.I see coloured balls of light and shaped light.I cannot sleep until the light comes,which has made me not able to sleep untill 5 in the morning.I have had a brain scan and its ok.I can also see perfectly in the dark,does anyone know why this is happening?
Mine is a right pupil.

Adies Pupil

I was surprised by the number of brown eyed people. Blue eyes are much more common for Northern Europeans than brown.

No one has ever commented on the size differnce in my pupils but I have dark brown eyes and my pupils are hard to see.

I fall asleep with the light on. I have never noticed headaches or auras.

I see well in the dark but that is likely due to the fact the pupil is open and lets more light in than usual. Sunny days give me problems but I can close down the pupil using a reflex that my neurologist pointed out. To get the pupil to close down hold up a finger in front of your nose about a foot away and looking at it with both eyes gradually bring it close to the tip of your nose.

I had a brain scan several years ago and it was normal. The nerve to the pupil and the lens of the eye is damaged in Adies. It has been suggested that a virus causes the damage but the research I read studied several common vruses such as measles but none seemed to be the culprit. I think that perhaps the fumes from the glue caused damage to the nerves.

If your doctor is not telling you much it is because very little is knowm. Since Adies is considered a minor neurological disease it seems likely that will continue.

Adies Pupil

I empathize with yuo - for me, it's like tiny little rainbows. I was first told that it was glaucoma, then two months later that it's Adies. I have not had a brain scan yet (returning to Opthamologist in two days)and sufffer from headaches almost daily. It's my left eye and they're hazel.

adies pupil

I was diagnosed with adies pupil in my left eye approx. 20 years ago. I am blue eyed, and find it interesting that the majority of people with adies pupil seem to have blue eyes. When first diagnosed, the adies pupil was very large all the time but over the years it has become much smaller. It is however, still fixed and mostly unreactive to light and is never the same size as the unaffected pupil. I use pilo-carpine eye drops to try and equalize pupillary size for cosmetic reasons, but it is difficult to get them to match exactly. The size of the unaffected pupil changes depending on the light,while the adies pupil does not, so the drops are required several times a day.

My near vision is affected(but not distance) as is night vision and I wear tinted glasses most of the time to prevent headache and eyestrain. I have also noticed that my eyeglass prescription has changed over the last 10 years, the adies eye requires +2.75 correction while the normal eye requires only +2.0. I'm not sure if this is a result of adies pupil or is just an age related change, I would be interested to hear if others who are affected with adies have seen the same thing.

adies syndrome

I was told I have adies syndrom in my left eye about 15 years ago. So far the only problem I have is going from outside bright light to inside. Everything looks kind of grey. The pupils take 5 min. or less to adjust so I can see inside. And I sweat on the left side of my face.Looks kind of weird to have it rolling down on the left side and hardly at all on the right.
I was also told that the sveincter muscels, like the ones that control the pupils are the ones that will be affected. Like blood vessels or any thing that dilates and constricts.
I am a blue eyed 54 year old female.

Gardisal

My daughter is having problems with the left eye. As well as many other problems with her health. We have attributed it to the vaccine gardisal/hpv vaccine. I am wondering is there anyone else out there finding the same problems?

adies syndrome

I have adies. and I have never had the vaccine. There are men that have adies and they have not recieved the vaccine.
I do not think that is where the proplem came from.

adies pupil

I was diagnosed with left adies pupil in 1995 (my eyes are blue), I may well have had it longer but had not paid much attention to it, at the time I had a very active occupation(british army). I was told it was probably due to a head trauma and it would most probably go away in time, they gave me scans, regular eye examinations all clear, and my vision is unaffected 20/20, and I am aged 38.
But spookily I have a daughter who was born in 1995, who also has blue eyes
And approx a month ago my wife noticed that her left also is constantly dilated and unresponsive to light.
If mine was supposdly due to a head trauma, how has my daughter got this? is this condition hereditary/genetic ?
Any advice would be useful.

i have recently been

i have recently been diagnosed with this too, but am very unsure what if anything can be done. I did not recieve many tests nor did the doctor i went too see no much about this too .
i 1st noticed this just over a year ago and was very worried i.e tumers ect..
As for me im 30 and have not noticed any other problems that may relate to this condition. also its in my left eye and im right handed. the thing that worries me is surely if your pupil will not shrink ,therefor letting more light in, surley this will damage sight?
Would like to no more, but not alot of info on this.

Adie syndrome for 25 years

I was diagnosed Adie syndrome on my right eye at 9 and on the left at 11. Now I am 34 I have had quite a normal life with some little "problems" which lack consideration (I don't think having to wear sunglasses most of the time and having to use reading glasses sometimes can be considered as something too serious) The only thing that annoys me a little more is that I sweat a lot and sometimes it is difficult to control and can be embarrassing.
I would like to ask people to be optimistic about this as our life is not at risk and many other people are suffering of much more serious conditions

Best of luck to everyone

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