Can we get more answers, can we make a difference?

Hello, I just got diagnosed with "Adies pupil" I am extremely frustrated with this condition; or maybe its the lack of information on it. I will say I am not the "Debbie Downer type" I'm 25 extremely active with my 2 favorite sports almost taken away from me (figure skating + snowboarding)Also was an artist in my spare time and that doesn't work anymore either.My depth perception is totally out. I am sorry if I start ranting but I am truly frustrated.
I was sent to a specialist. Once I finally got in to that doctor he treated me more like a nuisance then anything; word for word he said "people with this condition just get used to it" there were no answers to my questions :( I have migraines more often then not. I have been making myself read even through the headaches, because I enjoy it (reading that is) When I stumbled across this website I was excited to know I am not alone. But all I can think of now is How can we get the answers we deserve??? It seems because its not "life threatening" that there hasn't been enough research. Is there a way that this website with these writings can make a difference? I do believe in there being a reason for everything, so I am trying to find mine. I would love to be able to help make a difference for someone else.
So far only 2 strangers have noticed it. I do have a lot of people look at me as if they can't figure out what is out of the ordinary with me. All I know for sure is 3 job paths that I would have enjoyed to follow through with have come to a halt. That creates quite a lost feeling that's for sure.
I am very thankful for everyone's courage to speak out and if anyone has helpful advice I would love to hear it. I will keep trying to find more answers as I go. I am also going to try to find an acupuncturist and natural path in my area and see if that is the way for me.
Again sorry for the rant but I am sure all of us unique people have felt like this at one point.

Thanks for listening,
Angie

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